Cohort profile: demographic and clinical characteristics of the MILESTONE longitudinal cohort of young people approaching the upper age limit of their child mental health care service in Europe - Inria - Institut national de recherche en sciences et technologies du numérique Accéder directement au contenu
Article Dans Une Revue BMJ Open Année : 2021

Cohort profile: demographic and clinical characteristics of the MILESTONE longitudinal cohort of young people approaching the upper age limit of their child mental health care service in Europe

Dieter Wolke
Angelo Bertani
  • Fonction : Auteur
Maria Cataldo
  • Fonction : Auteur
Patrizia Conti
  • Fonction : Auteur
Katarina Dodig-Ćurković
  • Fonction : Auteur
Cecilia Ferrari
  • Fonction : Auteur
Alfred Kolozsvari
  • Fonction : Auteur
Jason Madan
Ottaviano Martinelli
  • Fonction : Auteur
Fiona Mcnicholas
Lesley O'Hara
  • Fonction : Auteur
Melanie Saam
  • Fonction : Auteur
Paramala Santosh
Anne Sartor
  • Fonction : Auteur
Ulrike Schulze
  • Fonction : Auteur
Swaran Singh
Elena Tanase
  • Fonction : Auteur
Helena Tuomainen
Gwen Dieleman
  • Fonction : Auteur
  • PersonId : 1132001

Résumé

Purpose The presence of distinct child and adolescent mental health services (CAMHS) and adult mental health services (AMHS) impacts continuity of mental health treatment for young people. However, we do not know the extent of discontinuity of care in Europe nor the effects of discontinuity on the mental health of young people. Current research is limited, as the majority of existing studies are retrospective, based on small samples or used non-standardised information from medical records. The MILESTONE prospective cohort study aims to examine associations between service use, mental health and other outcomes over 24 months, using information from self, parent and clinician reports. Participants Seven hundred sixty-three young people from 39 CAMHS in 8 European countries, their parents and CAMHS clinicians who completed interviews and online questionnaires and were followed up for 2 years after reaching the upper age limit of the CAMHS they receive treatment at. Findings to date This cohort profile describes the baseline characteristics of the MILESTONE cohort. The mental health of young people reaching the upper age limit of their CAMHS varied greatly in type and severity: 32.8% of young people reported clinical levels of self-reported problems and 18.6% were rated to be ‘markedly ill’, ‘severely ill’ or ‘among the most extremely ill’ by their clinician. Fifty-seven per cent of young people reported psychotropic medication use in the previous half year. Future plans Analysis of longitudinal data from the MILESTONE cohort will be used to assess relationships between the demographic and clinical characteristics of young people reaching the upper age limit of their CAMHS and the type of care the young person uses over the next 2 years, such as whether the young person transitions to AMHS. At 2 years follow-up, the mental health outcomes of young people following different care pathways will be compared. Trial registration number NCT03013595 .
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Dates et versions

hal-03634978 , version 1 (08-04-2022)

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Paternité - Pas d'utilisation commerciale

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Suzanne Gerritsen, Athanasios Maras, Larissa van Bodegom, Mathilde Overbeek, Frank Verhulst, et al.. Cohort profile: demographic and clinical characteristics of the MILESTONE longitudinal cohort of young people approaching the upper age limit of their child mental health care service in Europe. BMJ Open, 2021, 11 (12), pp.e053373. ⟨10.1136/bmjopen-2021-053373⟩. ⟨hal-03634978⟩

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