Pré-Publication, Document De Travail Année : 2025

Which infrastructure can I use to share human neuroimaging data? A Guide for researchers based in the EU

Quelle infrastructure pour le partage de données humaines de neuroimagerie ? Un guide pour les chercheurs de l'Union Européenne

Patricia Clement
  • Fonction : Auteur
  • PersonId : 1542447
Gareth J. Barker
  • Fonction : Auteur
  • PersonId : 1542448
Maria A. Fernández-Seara
  • Fonction : Auteur
  • PersonId : 1542450
Saide Begüm Feyzioglu
  • Fonction : Auteur
  • PersonId : 1542451
Vera Keil
  • Fonction : Auteur
  • PersonId : 1542454
Esin Ozturk-Isik
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  • PersonId : 1542457
Gülce Turhan
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  • PersonId : 1542463
Esther A.H. Warnert
  • Fonction : Auteur
  • PersonId : 1542464
Stephan Heunis
  • Fonction : Auteur
  • PersonId : 1542465

Résumé

The ability to share research data publicly is crucial for enhancing statistical power, improving the quality of results, and ensuring the generalizability of findings. Despite the widespread availability of web-based tools and collaborative opportunities, human neuroimaging data sharing remains challenging for researchers based in the European Union (EU) due to various obstacles. In particular, many of the infrastructures available to share brain imaging data do not comply with the General Data Protection Rule (GDPR) which is applicable in the EU for all data that come from human participants. To investigate the awareness and utilization of data sharing platforms, we conducted a global survey targeting neuroimaging researchers. Our findings showed that amongst the 81 respondents, less than 50% were familiar with an infrastructure designed for EU researchers and about 20% had already shared data. Respondents also identified several key challenges, including legal compliance and privacy concerns, resource and infrastructure limitations, ethical considerations, institutional barriers, and considerable awareness gaps. These results underscore the critical need to better publicize data sharing platforms that may be used by European researchers. Here, in an effort to guide EU researchers, we compiled a comprehensive list of infrastructures suitable for European researchers to share brain imaging datasets from human participants.

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Dates et versions

hal-05071218 , version 1 (16-05-2025)
hal-05071218 , version 2 (19-05-2025)
hal-05071218 , version 3 (19-05-2025)
hal-05071218 , version 4 (08-08-2025)
hal-05071218 , version 5 (17-12-2025)

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  • HAL Id : hal-05071218 , version 2

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Jérémy Lefort-Besnard, Alexandre Pron, Patricia Clement, Gareth J. Barker, Yaara Erez, et al.. Which infrastructure can I use to share human neuroimaging data? A Guide for researchers based in the EU. 2025. ⟨hal-05071218v2⟩
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